Knowledge user involvement is still uncommon in published rapid reviews-a meta-research cross-sectional study

Abstract

Background Involving knowledge users (KUs) such as patients, clinicians, or health policymakers is particularly relevant when conducting rapid reviews (RRs), as they should be tailored to decision-makers' needs. However, little is known about how common KU involvement currently is in RRs.Objectives We wanted to assess the proportion of KU involvement reported in recently published RRs (2021 onwards), which groups of KUs were involved in each phase of the RR process, to what extent, and which factors were associated with KU involvement in RRs.Methods We conducted a meta-research cross-sectional study. A systematic literature search in Ovid MEDLINE and Epistemonikos in January 2024 identified 2,493 unique records. We dually screened the identified records (partly with assistance from an artificial intelligence (AI)-based application) until we reached the a priori calculated sample size of 104 RRs. We dually extracted data and analyzed it descriptively.Results The proportion of RRs that reported KU involvement was 19% (95% confidence interval [CI]: 12%-28%). Most often, KUs were involved during the initial preparation of the RR, the systematic searches, and the interpretation and dissemination of results. Researchers/content experts and public/patient partners were the KU groups most often involved. KU involvement was more common in RRs focusing on patient involvement/shared decision-making, having a published protocol, and being commissioned.Conclusions Reporting KU involvement in published RRs is uncommon and often vague. Future research should explore barriers and facilitators for KU involvement and its reporting in RRs. Guidance regarding reporting on KU involvement in RRs is needed.